The wife found this great site: Talk ABout it.
Not a lot of information on it I didn’t already know, but I like the goal. I remember when the Mrs. first let me talk about her Epilepsy. It was like a HUGE weight was lifted from me. She’s fairly well controlled, so much that most of her co-workers had no idea she had epilepsy until she told them (tho we’re going forward with surgery for a reason, most of them had an “Oh Yeah!” moment too)
There are just so many little things that it ties into its very hard to naturally cover for it.
The Mrs. found the site through this youyube channel Some very interesting videos over there. I will note the Mrs. has Epilepsy on the right side and the memory side-effects experienced by this gentleman post-op, as well as the fact that he was awake during the surgery aren’t likely to happen to the Mrs. (The awake bit will NOT happen, there is no need with her case).
Also I was glad that not only did she allow me (its her body, her choice!) to talk about it with coworkers and friends, but also she allowed me to talk about it online.
I was very pleased because I see Epilepsy as a pretty prolific disorder that most people know little about, and are likely only aware of the most severe cases (as in uncontrolled epileptics who have grand mal seizures only). So I devoted some time in my LiveJournal to Epilepsy awareness. I’m gonna do the same here.
FYI if you want to read our story, and you’ve only been following the big-kid blog, or only known about me recently, check out My Live Journal for some entries. You can certainly scroll around that entry for all sorts of info on the time spent in the EEG monitoring unit.
Surgery is set for the end of August, and we’re having a second opinion given next week. Looking forward to seizure freedom!
And hey look, there’s a comments section below! Talk about it!
Yarrrrr
I wish you guys the best of luck, I knew a gentleman that had REALLY bad problems with seizures. he had many surgeries and implants trying to fix it.
His last one seemed to lessen the severity of his problems but did not releave it completely.
I grew up with his oldest son, and his youngest son basically lived with me while he was in high school (taught him how to do mechanical work as we built a few vehicles in my mom’s warehouse).
I wish you the absolute best of luck.
Thanks. And thank you for your story. I will say the prognosis for Seizure freedom looks VERY good in my wife’s case. “Textbook” keeps getting passed around as a cliche.