Weer'd World

I think the total was 6 seizures last night. Needless to say the Mrs. is feeling VERY sore and tired (having all your muscles tense and spasm all at once is like the worlds nastiest Pilates class) Thankfully no more tongue chomping.

Talked to the doctor at about 1:30am (she sounded fresh as a daisy, dunno if she was up doing work or if she’s a good faker) and she recommended a further increase on the anti-convulsants which we administered (and it was a pain in the ass as of this time she could barely keep her eyes open and wasn’t really understanding what was happening). She had one last one at about 2am, and then the meds must have reached a therapeutic dose because she fell asleep and that was that.

I watched her for close to another hour, my mind twisted with sleep and adrenaline, just waiting for the next wild ride.

I’ll definitely need to catch a nap this afternoon. I think we’re out of the woods for now.

Appointment with the Doctor on Tuesday where we’ll talk some more about this and how we’ll go forward.

She just had another seizure. This one seemed to last a long time. And if you’ve never seen somebody in a full-blown grand Mal, there’s no way to describe how horrible they are.

Mother-in-law hollered to me, and I came running. After the smoke cleared she mentioned how glad she was that I was here.

Certainly I made the right choice to head home.

Meds are on board, I guess we just have to wait for them to kick in.

Well I’m back in Massachusetts now, after giving a very impromptu promotion to one of my staffers to Assistant Security Chair. Hopefully Portcon will do well in my absence.

Why am I here? Well I got a call from the Mrs. at 1am last night and she was really upset. She was concerned she had had a seizure in her sleep. Her muscles felt sore, and she just had a bad feeling about it.

She took some Lorazepam which essentially conks the brain out and quiets any seizure activity and let her go to sleep.

Next morning we talked and chalked it up to her lugging some heavy groceries home, coupled with a epilepsy nightmare. The nightmares are not uncommon to her, as you can imagine for a woman who’s dealt with this condition for about half of her life.

Well optimism was not to win out. With the first Convention attendees getting their badges and my staff starting their duties my phone rang.

It was the Mrs. again. She was disoriented, groggy, and talking funny on account that she had bit up her tongue pretty bad. There could be no doubt that she had had a seizure.

I gave things a little bit of thought, then I tracked down the con chair and told her my dilemma. A few more meetings with a few more people, and I was encouraged to get the hell out of Dodge and take care of my wife, and assured the slack would be picked up, and I would be missed.

So on the highway I went and returned. Also Mom-in-Law was coming down anyway, so she’s here as well, so Casa de Weer’d is well staffed with caregivers.

She also talked to the doctor who is putting her back on an intermediate dose of her meds. During her med taper we knew this was a possibility, just we got a little confident when the last of the pills were taken and 3 weeks passed with no ill effects.

Still 10 months without a seizure and 3 weeks of no meds without a seizure is a vast improvement for a woman who had about 12 seizures a month on a very high dose of medication.

Spirits are pretty low here, but I suspect a reasonable end-game of no seizures on a low dose of medication is in our future.

Still if you got any of those thoughts and prayers laying around, they’d me much appreciated, especially since the Mrs will be reading this once she’s feeling a bit better.